CF Wind Sprint Video Series
The Boomer Esiason Foundation has posted Episode 14 of the CF Wind Sprint video series on its web site. This short-format video demonstrates exercises to strengthen core muscles, which helps makes coughs more productive.

CF Wind Sprints is a series of brief videos hosted by BEF Volunteer Jerry Cahill. The videos address a variety of topics relevant to living with CF, including nutrition, exercise, treatments and travel.

BEF invites the CF community to submit questions and topics for CF Wind Sprints via its Facebook fan page or on Twitter.

The CF Wind Sprint series is made possible by an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. ...

 

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Special CF Research Update - VX-809
We have some encouraging news to report this morning regarding results of the Phase 2a clinical trial of VX-809. As you know, this one of the first drugs developed to treat the basic defect in cystic fibrosis. Through our Therapeutics Development Program, the CF Foundation collaborated with Vertex to discover and develop VX-809 and VX-770, investing approximately $76 million in the effort. This represents the largest single investment in CF drug discovery by the Foundation....

 

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Know CF - Quiz
Hello CysticFibrosis.com

Community, We hope that those of you who are parents of a child with CF will take this parenting questionnaire. After completing the quiz, you can see how you compare with others and, if you haven't already, you might watch the first two videos on KnowCF about parenting children with health issues.

Learn your score and use this quiz to help pinpoint areas in which you may try to improve. Parenting is a tough job and with a health issues, the challenges can seem daunting!

Click here to begin the online survey, adapted from Lisa C. Greene's Tips for CF Parents.

The results of the survey will be available next week at KnowCF.com for everyone to see.

May your knowledge of the world of CF expand through our efforts at KnowCF! Jeanne Barnett

- Jeanne Barnett

 

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Learn About CF
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

* clogs the lungs and leads to life-threatening lung infections; and
* obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond...

 

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CFF.org

The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide...



Research and the Future of CF Care Web cast
Watch “Research and the Future of CF Care” to hear the latest update on CF Research and the answers to questions submitted by the CF community
Partnering for Care Series Web cast
You can also see, the "Partnering for Care Series" featuring healthcare professionals from the Johns Hopkins CF Center.